Cornelia de Lange Syndrome CdLS Foundation, Inc.

The Cornelia de Lange Syndrome CdLS Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS make informed decisions throughout their lives. The CdLS Foundation is a national non-profit organization that has served people with CdLS and their families since 1981. The Foundations mission is reflected in its slogan Reaching Out, Providing Help, and Giv

OVERVIEW

This website cdlsusa.org presently has an average traffic ranking of zero (the smaller the more traffic). We have researched twenty-nine pages inside the web page cdlsusa.org and found one thousand and thirty-six websites associating themselves with cdlsusa.org. There is three contacts and addresses for cdlsusa.org to help you correspond with them. There is three social networking sites possessed by this website. This website cdlsusa.org has been online for one thousand two hundred and eighty-one weeks, twenty days, twenty-one hours, and fifty-three minutes.
Pages Analyzed
29
Links to this site
1036
Contacts
3
Locations
3
Social Links
3
Online Since
Dec 1999

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CDLSUSA.ORG HISTORY

This website cdlsusa.org was first filed on December 17, 1999. As of today, it is one thousand two hundred and eighty-one weeks, twenty days, twenty-one hours, and fifty-three minutes old.
REGISTERED
December
1999

PERIOD OF EXISTANCE

24
YEARS
6
MONTHS
20
DAYS

LINKS TO BUSINESS

Addison Isabella Brown

Saturday, September 4, 2010. Tuesday, June 8, 2010. My baby is growing up. Sunday, May 9, 2010. CdLS Awareness Day at Nicholson Elementary. Saturday, April 24, 2010. Today Addison, Aunt Margee, and I walked in the March of Dimes walk at Wabash College. I had a blast! Here are some pictures. The Lil Miss P Team rocks! And Lil Miss Peyton was as cute as ever! My darli.

Ask The Expert Cornelia de Lange Syndrome CdLS Foundation, Inc.

For parents, caregivers, health care providers, and teachers, concerns and questions often arise in regards to the care and well-being of individuals with CdLS. Birth Control and Weight Gain.

Best Dressed Baby in the ICU

Best Dressed Baby in the ICU. Tuesday, April 1, 2014. Thursday, March 6, 2014.

Wills Way, Life with Cornelia deLange Syndrome A site to share information about Cornelia deLange Syndrome

Inflammed tissue, infection, gunk and junk from previous infections and blocked with wax. Also a blocked passageway from a nasal polyp. Your teeth were in bad shape too, also causing pain. 3 baby teeth removed and several fillings.

The CdLS Foundation Blog

This blog serves as a pipeline for sharing Foundation news, research, updates, and details about upcoming CdLS events on a more current basis. Get ready for Golf in MO.

Home Building Bridges Therapy

Providing the Next Step Towards Independence. Learning Center Now Enrolling Ages 2-29. Welcome to Building Bridges Therapy. Building Bridges Therapy offers speech, occupational, physical, and ABA therapy in individual and group settings. The staff and therapists have been nothing but wo.

Busiest Mommy in America

Friday, June 24, 2011. Tube weaned, Maybe? Links to this post. Tuesday, April 26, 2011. Monday, April 18, 2011. We just heard from PRC, the company that makes the device Sean will use for communication. Yay! Links to this post. Saturday, March 26, 2011.

The CdLS Foundation Calendar of Events

Salt Lake City, Utah. United Airlines NYC Half Marathon. Multidisciplinary Clinic for Adolescents and Adults. 2018 TD Five Boro Bike Tour.

Our Adventures with Baylee. Cornelia de Lange Syndrome and Debt Free Living

If you have kids ask them if they are using Habbo, and if they are, ban them from it before you get a surprise in your cell phone bill. Note to self about Christmas next year. She can wake up and be surprised.

WHAT DOES CDLSUSA.ORG LOOK LIKE?

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CONTACTS

Cornelia de Lange Syndrome Foundation, Inc.

cdls cdls

302 West Main Street, #100

Avon, Connecticut, 06001

US

CdLS Foundation

Liana Fresher

302 W. Main St. Ste. 100

Avon, Connecticut, 06001

US

Web Solutions

Thomas Barton

250 Pomeroy Avenue

Meriden, Connecticut, 06450

US

CDLSUSA.ORG HOST

I caught that a single page on cdlsusa.org took three hundred and sixty-six milliseconds to stream. I could not detect a SSL certificate, so our crawlers consider cdlsusa.org not secure.
Load time
0.366 seconds
SSL
NOT SECURE
Internet Address
104.27.135.33

NAME SERVERS

ns1.myecommercedns.com
ns2.myecommercedns.com
ns1.myecommercedns.net
ns2.myecommercedns.net

BOOKMARK ICON

SERVER OPERATING SYSTEM AND ENCODING

I diagnosed that cdlsusa.org is utilizing the cloudflare server.

TITLE

Cornelia de Lange Syndrome CdLS Foundation, Inc.

DESCRIPTION

The Cornelia de Lange Syndrome CdLS Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS make informed decisions throughout their lives. The CdLS Foundation is a national non-profit organization that has served people with CdLS and their families since 1981. The Foundations mission is reflected in its slogan Reaching Out, Providing Help, and Giv

CONTENT

This website has the following on the site, "Stocks, Trusts and Other Gifts." Our analyzers viewed that the web page also said " The CdLS Foundation staff is here to listen and help." The Website also said "2357 Monday through Friday, 830 am to 5 pm, eastern time."

SUBSEQUENT WEB PAGES

CdLS Foundation The Water Cooler

On our brand new Web site. Happy Holidays from the CdLS Foundation. The 40 page book has lots of.

Life with Jessica Ramblings on raising a child with Cornelia de Lange Syndrome

Ramblings on raising a child with Cornelia de Lange Syndrome. Happy Saturday, happy Spring! Posted in SOOC Saturday.

Cornelia de Lange Syndrome - CdLS World

Last modified by Gerritjan Koekkoek. World of the Cornelia de Lange syndrome. Here you can find people who know about CdLS as well as answers to your questions about the condition. Here you can find hope. CdLS is a rare and complex syndrome! All of the inform.

Caveau de la Tour Meursault Spécialiste en grands vins Jean-Paul Madaleno

Un tour du monde des grands vins. Des crus authentiques et généreux pour exprimer toute la richesse et la diversité de ces fabuleux vignobles. Dans le monde entier des bouteilles introuvables. Des vins Coups de cœur.